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SM Voices

The latest insights and perspectives from people who have lived and struggled with SM

Tara Keith The cost of canceling plans: Feeling shamed when I need support the most
Olivia Banks Traveling with systemic mastocytosis: My tried-and-true tricks
Tara Keith I’m living my best life, even if it’s now from the back of the plane
Tara Keith Finding new hope: My trip to Boston to attend the WODC 2025
Olivia Banks My doctors let me down. Now I’m learning to live with new worries
Tara Keith Facing a shortage of medication when you need it most
Tara Keith I didn’t know SM could cause osteoporosis. Neither did my doctors

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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.

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